Help Kynli live her best life
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Hi, my name is Kynli Springs. I was diagnosed with a neurological dysfunction called chronic regional pain syndrome (CRPS), also known as the suicide disease, in March of 2021.I was your everyday teenager who loved being a cheerleader, playing volleyball, hanging out with my friends and spending tons of time at the lake. One innocent game of basketball in December of 2019 with a few friends stole my entire life from me. Initially, I was told I had a talus fracture and an osteochondral lesion. All I knew was that I was in constant burning pain that could not be controlled with medication.
I started to have tingling and loss of feeling from my calf down to my toes. After multiple X-rays, MRI’s and about 5 doctors appointments I was told I had CRPS and referred to a pain management doctor. I immediately started having weekly spinal block injections to try and control the pain and hopefully put the CRPS into a remissive state so that I could have surgery on my ankle to repair it. At this point I had missed the biggest cheer competition of the year and was doing school virtually due to the amount of medication I was on. I had a few close friends that continued to stay in touch with me but I pretty much lost cheer, my social life and my brain was too foggy to even function. My body hurts all over, I have constant headaches and have difficulty sleeping. The depression I started to suffer from was something I would never have imagined could happen to me.
The pain management doctor was providing some relief but not much so she referred me to a special children's hospital. They told us that I had been misdiagnosed and just needed to get out of the boot and have surgery. My ankle repair surgery was in May of 2021. Within 4 weeks after surgery the CRPS returned with a vengeance. I was doing physical therapy twice a week and it only seemed to be making me hurt more. The children's hospital then changed their mind and said I did in fact have CRPS. They admitted me inpatient for a very intense physical, occupational and mental health program. Their treatment was unsuccessful and they wanted me to return back to pain management and possibly seek another inpatient medical program. Both the 2nd inpatient program and the pain management doctor recommended narcotics, spinal blocks, ketamine infusions that can cause hallucinations and possibly a pain stimulator. I cannot even begin to describe what a scary feeling that was for me at 16.My entire future that once seemed so bright was gone and lifelong pain was my new reality. The constant pain of CRPS has now traveled to my hands and some days I can hardly hold onto my pen at school. I have been fighting a losing battle for over a year now.
We have a start date at the Spero Clinic on April 4th. The Spero Clinic (“Spero” means “Hope” in Latin) is an innovative holistic treatment program in Fayetteville, Arkansas. CRPS patients are achieving significant healing and even remission through their synergistic program of physical therapy and hands-on Vagus nerve adjustments, which help the body’s Central Nervous System (CNS) to heal, thereby getting to the root issues of CRPS. The clinic has an impressive success rate of over 80%. Please help support us financially as we embark on this monumental journey of healing.
The Burning Limb Foundation is a 501c3 Non-Profit, all donations are tax deductible.
Checks can be made payable to the Burning Limb Foundation, 15652 Wyoming Drive, Frisco TX 75035